New job, same old epilepsy

I recently started a new job, as web editor for a magazine for independent retailers, and I’m happy to report that I’m really enjoying it. It makes such as difference to have a boss that trusts me to get on with my job and isn’t looking over my shoulder the whole time. When I first…

Tortuous times

I’ve finally had a letter from the neurosurgical team at King’s College London for a follow up appointment after all of my tests – MRI, PET scan, six-day EEG and neurophysiological assessment – in recent months. I’m not sure how I’m going to survive more than 50 days without knowing whether I am a candidate…

Testing times

I can’t remember anything evoking such emotion in me as the announcement I might be a candidate for brain surgery. I had always assumed that my epilepsy wasn’t serious enough – I don’t drop to the ground having convulsive seizures, I can work, I can live a normal life – I just have to take…

Exercising with epilepsy

Today I plan to start a new exercise routine. I am going to set foot in my local gym for the first time in almost a year, I figure it’ll boost my confidence for my ongoing job search. So what? I hear you ask. Well going to the gym by yourself when you’ve got epilepsy…

I have epilepsy, but I’m NOT disabled

It’s not often that I am angered by things I read, but today a blog on the Huffington Post website left me seething. For those of you who missed it, the blog claimed: “Sadly as much as we [people with epilepsy] attempt to fit in, we aren’t just ‘regular people’. “Regardless of how severe your…

Epilepsy heroes … Leon Legge

If you asked the majority of the British public whether someone with epilepsy could be a professional footballer, I think the majority of people would say no way, myself included. I can’t imagine putting in all that physical effort while battling the fatigue (and other side effects) caused by my anti-epileptic drugs, in addition to…

The chronicles of job hunting with epilepsy

For reasons I’ll explain in an upcoming blog, I currently find myself searching for a new job again. Running the gauntlet of recruitment agencies, job boards, employers, CVs, application forms and interviews is tricky at the best of times, but when you throw epilepsy into the mix it becomes that much harder. I don’t mention…

Epilepsy stars wanted!

People with epilepsy and support groups will be fully aware that last week was National Epilepsy Week, but I am not convinced the message reached the majority of the British public. When I consider why that is, for me it boils down to one thing, where are the celebrities with epilepsy? For example, Prince William…

Epilepsy heroes … Ian Curtis

Up until a few months ago I didn’t know who Ian Curtis, lead singer and lyricist of the post-punk rock band Joy Division, was. I found out when researching a previous blog, about films with epilepsy as a central theme, and I watched the biopic called Control. Since then I have spent a great deal of…

My epilepsy story

Today is Purple Day – an international day for raising awareness of epilepsy – and one of the main ways people do this is by sharing their stories. So here goes… I was diagnosed aged 29 at a press event in Germany, which sounds glamorous, but was anything but. I was attending a trade show…

Vest to detect seizures wins national Stem prize

A vest which can detect epileptic seizures up to eight minutes before they occur has been recognised by this year’s Big Bang UK Young Scientists & Engineers Competition. Teenagers Sankha Kahagala-Gamage and David Bernstein were jointly awarded the UK Young Engineer prize after being inspired by witnessing an epileptic fit. The students from Loughborough Grammar…

Top 10 films featuring an epilepsy stoyline

In case you weren’t aware, today is International Epilepsy Day – a joint initiative created by the International Bureau for Epilepsy and the International League Against Epilepsy – which aims to promote awareness of the condition. It is estimated that there are 65 million people living with epilepsy around the world, but despite that figure,…