Epilepsy stars wanted!

People with epilepsy and support groups will be fully aware that last week was National Epilepsy Week, but I am not convinced the message reached the majority of the British public. When I consider why that is, for me it boils down to one thing, where are the celebrities with epilepsy? For example, Prince William…

Epilepsy heroes … Ian Curtis

Up until a few months ago I didn’t know who Ian Curtis, lead singer and lyricist of the post-punk rock band Joy Division, was. I found out when researching a previous blog, about films with epilepsy as a central theme, and I watched the biopic called Control. Since then I have spent a great deal of…

My epilepsy story

Today is Purple Day – an international day for raising awareness of epilepsy – and one of the main ways people do this is by sharing their stories. So here goes… I was diagnosed aged 29 at a press event in Germany, which sounds glamorous, but was anything but. I was attending a trade show…

Vest to detect seizures wins national Stem prize

A vest which can detect epileptic seizures up to eight minutes before they occur has been recognised by this year’s Big Bang UK Young Scientists & Engineers Competition. Teenagers Sankha Kahagala-Gamage and David Bernstein were jointly awarded the UK Young Engineer prize after being inspired by witnessing an epileptic fit. The students from Loughborough Grammar…

Top 10 films featuring an epilepsy stoyline

In case you weren’t aware, today is International Epilepsy Day – a joint initiative created by the International Bureau for Epilepsy and the International League Against Epilepsy – which aims to promote awareness of the condition. It is estimated that there are 65 million people living with epilepsy around the world, but despite that figure,…

Premier League loses sparkle with every light show

Last night I experienced my third Premier League ‘light show’ – where the floodlights are flashed on and off to music – at AFC Bournemouth. I didn’t think they could make me any angrier, but I was wrong. I knew the Cherries had put on ‘light shows’ in the past so I emailed and tweeted the…

Taking epilepsy action

There are many perks to being a journalist – you get taken to press events in glamorous locations and are sent freebies to review – but the highlight for me is to be able to use my writing to promote subjects that are important to me. At the end of last year I wrote this…

Make football see the light over epilepsy

I’m not ashamed to say I’m addicted to football. I am the proud owner of a Crystal Palace home and away season ticket – I have missed one competitive match in five years. I will never forget the feeling of walking up the stairs at Selhurst Park and seeing the pitch and the stadium in…

Here’s to a happy New Year!

I used to blog about my epilepsy about five years ago, not long after I was diagnosed, but despite them being warmly received, I stopped. I didn’t feel like I had anything new or important to say. My treatment hadn’t changed, I was still having seizures, I was just plodding along accepting that this was…