Drug struggling

I’m really struggling with my epilepsy at the moment … I don’t think I’ve ever said that before. I’m currently in the process of coming off of Keppra – one of my anti-seizure medications. I am reducing my dose by 250mg every two weeks  as prescribed – and I’m half way towards my goal –…

A step closer to surgery

At the end of last year I was admitted to King’s College London for a week-long EEG to explore whether epilepsy surgery was a possibility for me. I got the results the week before Christmas and I’ve been struggling to get my head around them ever since. The PET (Positron emission tomography) scan, which shows…

New job, same old epilepsy

I recently started a new job, as web editor for a magazine for independent retailers, and I’m happy to report that I’m really enjoying it. It makes such as difference to have a boss that trusts me to get on with my job and isn’t looking over my shoulder the whole time. When I first…

Tortuous times

I’ve finally had a letter from the neurosurgical team at King’s College London for a follow up appointment after all of my tests – MRI, PET scan, six-day EEG and neurophysiological assessment – in recent months. I’m not sure how I’m going to survive more than 50 days without knowing whether I am a candidate…

Testing times

I can’t remember anything evoking such emotion in me as the announcement I might be a candidate for brain surgery. I had always assumed that my epilepsy wasn’t serious enough – I don’t drop to the ground having convulsive seizures, I can work, I can live a normal life – I just have to take…

Exercising with epilepsy

Today I plan to start a new exercise routine. I am going to set foot in my local gym for the first time in almost a year, I figure it’ll boost my confidence for my ongoing job search. So what? I hear you ask. Well going to the gym by yourself when you’ve got epilepsy…

I have epilepsy, but I’m NOT disabled

It’s not often that I am angered by things I read, but today a blog on the Huffington Post website left me seething. For those of you who missed it, the blog claimed: “Sadly as much as we [people with epilepsy] attempt to fit in, we aren’t just ‘regular people’. “Regardless of how severe your…

Epilepsy heroes … Leon Legge

If you asked the majority of the British public whether someone with epilepsy could be a professional footballer, I think the majority of people would say no way, myself included. I can’t imagine putting in all that physical effort while battling the fatigue (and other side effects) caused by my anti-epileptic drugs, in addition to…

Bullies never prosper

I had always been dubious about stories of workplace bullying, I didn’t understand how people let themselves get into that situation, I’d certainly never experienced anything like it my career … well until earlier this year. I had been in my job for three years without a problem and then one day my boss quit…

The chronicles of job hunting with epilepsy

For reasons I’ll explain in an upcoming blog, I currently find myself searching for a new job again. Running the gauntlet of recruitment agencies, job boards, employers, CVs, application forms and interviews is tricky at the best of times, but when you throw epilepsy into the mix it becomes that much harder. I don’t mention…

Epilepsy stars wanted!

People with epilepsy and support groups will be fully aware that last week was National Epilepsy Week, but I am not convinced the message reached the majority of the British public. When I consider why that is, for me it boils down to one thing, where are the celebrities with epilepsy? For example, Prince William…

Epilepsy heroes … Ian Curtis

Up until a few months ago I didn’t know who Ian Curtis, lead singer and lyricist of the post-punk rock band Joy Division, was. I found out when researching a previous blog, about films with epilepsy as a central theme, and I watched the biopic called Control. Since then I have spent a great deal of…